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Oh the irony....

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Old 28-05.-2008, 08:53 AM   #46
swampy1970
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
So, are you going to get an ultrasound, or are they going to give you a little time now that you know how to use your inhaler properly?

I've not heard back from my PCP yet - I don't know when he'll get the results or even when the results will be reviewed....

I've sent him a message via Kaisers wonderful "send your Doc a message" system - still waiting to hear back for the next step...
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Old 28-05.-2008, 11:30 AM   #47
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Default Re: Oh the irony....

Swampy - you wrote before that you were losing some weight before this happened. You said that in at least one of those weeks you lost 3 pounds. I don't know if that was a common occurance for you. Most of the guidelines I have seen suggest 1-2 pounds/week (<= 1 kg) maximum.

I really don't know what I'm talking about here but I'm just wondering if the rate of weight loss (not just the weight loss per se) taxed your system too much. Just thinking out loud.
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Old 28-05.-2008, 12:21 PM   #48
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Default Re: Oh the irony....

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Originally Posted by Steve_B
Swampy - you wrote before that you were losing some weight before this happened. You said that in at least one of those weeks you lost 3 pounds. I don't know if that was a common occurance for you. Most of the guidelines I have seen suggest 1-2 pounds/week (<= 1 kg) maximum.

I really don't know what I'm talking about here but I'm just wondering if the rate of weight loss (not just the weight loss per se) taxed your system too much. Just thinking out loud.

3 lbs in a week wasn't a common occurance for me. On average it'd work out over time to around 1.5lb per week, taking the weight on Sunday mornings as the reference, but there'd be weeks where I'd be losing during the week and I'd maybe pig out after a long ride on Saturday and "seemingly" gain it back and then the following week I'd be down 3lbs.... if you see what I mean.

Initially, when I was up in the 200+lb range, I was losing 2 to 3 lbs per week.
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Old 28-05.-2008, 12:33 PM   #49
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
So, are you going to get an ultrasound, or are they going to give you a little time now that you know how to use your inhaler properly?

I'm going to change Primary Care Physicians, that's the first order of the day.

I sent my Doc a message letting him know that I had the PFT done and that he should be seeing the results real soon. I also let him know about some other stuff that I noticed when I purposely taxed myself a little doing stuff yesterday.

His reply was basically, wait until you have your appointment in July and then call me back because he was really sure that this is the only test that I need done.....

.... well if I hadn't just got done telling him that I got in that morning and took the test already.



After the deal with the two different diagnosis of the x-rays and now the comments from the doc in the Pulmonary dept questioning why I was down there for a test (as lung function does not generally deteriorate overnight like that) without being 'tested' for emboli and heart problems first, I'm not really "feeling the love" for my current PCP.

It would seem as though one of the women in the Pulmonary department has a son that rides in the Chipotle Slipsteam team. There were pics printed out from some of the races he's been in over in Europe this year.

Thankfully, I discovered today that someone at work has a sister that works at Kaiser and has a clue about which Docs are more prudent in keeping good records and being a little more keen in finding out what's wrong with patients when things are a little puzzling.
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Old 29-05.-2008, 11:42 AM   #50
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Default Re: Oh the irony....

Quote:
Originally Posted by swampy1970
I'm going to change Primary Care Physicians, that's the first order of the day.

I sent my Doc a message letting him know that I had the PFT done and that he should be seeing the results real soon. I also let him know about some other stuff that I noticed when I purposely taxed myself a little doing stuff yesterday.

His reply was basically, wait until you have your appointment in July and then call me back because he was really sure that this is the only test that I need done.....

.... well if I hadn't just got done telling him that I got in that morning and took the test already.



After the deal with the two different diagnosis of the x-rays and now the comments from the doc in the Pulmonary dept questioning why I was down there for a test (as lung function does not generally deteriorate overnight like that) without being 'tested' for emboli and heart problems first, I'm not really "feeling the love" for my current PCP.

It would seem as though one of the women in the Pulmonary department has a son that rides in the Chipotle Slipsteam team. There were pics printed out from some of the races he's been in over in Europe this year.

Thankfully, I discovered today that someone at work has a sister that works at Kaiser and has a clue about which Docs are more prudent in keeping good records and being a little more keen in finding out what's wrong with patients when things are a little puzzling.
Take your story to the ombudsman. If docs aren't up to snuff, the system really does want to know it. I haven't practiced in over 10 years and the work up made zero sense to me. Glad (for me, not for you) my thoughts were substantiated by the pulmonary doc. Haven't lost everything.
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Old 29-05.-2008, 12:26 PM   #51
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
Take your story to the ombudsman. If docs aren't up to snuff, the system really does want to know it. I haven't practiced in over 10 years and the work up made zero sense to me. Glad (for me, not for you) my thoughts were substantiated by the pulmonary doc. Haven't lost everything.

I just heard back from my friend, whose sister works at Kaiser, and there's a doc who's accepting patients who's a marathon runner (3hr 18min) and a keen cyclist.... and from her comments is very prudent on following up with patients and his records are excellent.
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Old 30-05.-2008, 12:16 AM   #52
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Default Re: Oh the irony....

Quote:
Originally Posted by swampy1970
I just heard back from my friend, whose sister works at Kaiser, and there's a doc who's accepting patients who's a marathon runner (3hr 18min) and a keen cyclist.... and from her comments is very prudent on following up with patients and his records are excellent.
Here is a thread on ST you might want to show your doctor. Kona age-group winner with heart disease going from winning to heart attack in less than a year. He is now post surgery and back to training. Every possibility needs to be explored.
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Old 30-05.-2008, 02:22 PM   #53
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
Here is a thread on ST you might want to show your doctor. Kona age-group winner with heart disease going from winning to heart attack in less than a year. He is now post surgery and back to training. Every possibility needs to be explored.

I'm not sure whether to say thanks or "oh crap..." LOL
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Old 30-05.-2008, 07:51 PM   #54
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Frank;

Thanks for that post.

"Given the nature of this disease and the necrotic section on the heart, my surgeon and cardiologist are following this recovery process with great interest. It is a refreshing change for them to find someone who looks forward to the rehab and shares an interest in exploring the boundaries of recovery. At this point, I have no idea what that limit is but will keep pushing until I find it."

I believe I have found a similar Cardiologist, and part of me is motivated by the prospects of corrective action and recovery. In another life, I was a highly regarding failure analysis engineer working on various space programs.

"Hopefully, other individuals suffering from heart disease are motivated by my example. And, for those with a family history of heart disease, don't think that exercise alone provides immunity."

I could not agree more. I have had symptoms for three years, including a marked decline in power when it should have been stable to slightly increasing. It was all there, I was just too dense to recognize it...

John
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Old 30-05.-2008, 09:47 PM   #55
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Default Re: Oh the irony....

This is an interesting topic it reminded me of this article I read a while back about calcium.

"About 50% of arterial plaque is calcium and only 3% is cholesterol." FWIW

http://www.knowledgeofhealth.com/re...ium,Cholesterol
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Old 31-05.-2008, 10:21 AM   #56
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Default Re: Oh the irony....

Quote:
Originally Posted by swampy1970
I'm not sure whether to say thanks or "oh crap..." LOL
It is ok to say "oh crap", but what you really need are answers. Something like this is only a possibility. If what is going on is something like this it is better to know sooner than later.
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Old 31-05.-2008, 01:19 PM   #57
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
It is ok to say "oh crap", but what you really need are answers. Something like this is only a possibility. If what is going on is something like this it is better to know sooner than later.

Frank is right again. Don't worry until you know, get an accurate prognosis ASAP, then plan a course of action.
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Old 31-05.-2008, 01:58 PM   #58
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Default Re: Oh the irony....

Quote:
Originally Posted by Fday
It is ok to say "oh crap", but what you really need are answers. Something like this is only a possibility. If what is going on is something like this it is better to know sooner than later.
I guess I get to find out real soon. I ended up going to the local Kaiser minor injury clinic tonight (no ER there) whilst having some chest pain, they did a EKG and want me to go pay Kaiser's ER in Vallejo a visit. More bloodwork and then a "treadmill test".... and then take it from there....

Just gotta wait for my wife to finish her ice cream so she can go drive me down there. Priorities huh... I jest of course....

Actually, I feel all fine and dandy now - what's gonna hurt is yet another ER visit co-pay and a possible overnight stay. As the MD at the MIC said - it's either that or wait a month or so for a scheduled appointment. Do I want to know now or in 2 to 6 weeks.... Now is good.
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Old 01-06.-2008, 05:53 AM   #59
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Default Re: Oh the irony....

Quote:
Originally Posted by swampy1970
I guess I get to find out real soon. I ended up going to the local Kaiser minor injury clinic tonight (no ER there) whilst having some chest pain, they did a EKG and want me to go pay Kaiser's ER in Vallejo a visit. More bloodwork and then a "treadmill test".... and then take it from there....

Just gotta wait for my wife to finish her ice cream so she can go drive me down there. Priorities huh... I jest of course....

Actually, I feel all fine and dandy now - what's gonna hurt is yet another ER visit co-pay and a possible overnight stay. As the MD at the MIC said - it's either that or wait a month or so for a scheduled appointment. Do I want to know now or in 2 to 6 weeks.... Now is good.

They had me hooked up to a monitor all night and I had chest pains a couple of times during the night but no change in oxygen saturation, nor much of a change in heart rate or the trace. That one kerfuffled the docs.

That f**king alarm on the monitor though kept waking me up when my HR went below 50. Finally got a bed a 1.30am, in for a chest x-ray at 3am, a second set of blood work that evening at ~4am, then after that the alarm on the monitor woke me up about every 10 minutes and they left it beeping for another 10 minutes each time. Got sleep?

So they finally saw that 'something is wrong' - ie, I can't really walk all that fast without being totally out of breath... When they started the treadmill test at a merge 1% grade at 3.4mph my heart rate jumped straight to 110-120bpm. 8% at the same speed - ~150bpm, 14% got up into the 160s and it wasn't good. I had to stop the test. EKG was squeaky clean all the way through.

Turns out the results from my Pulmonary Function Test from last Tuesday were really good.

The cardiologist is undecided a little about doing an echo - but I'm going to ask the doc for one.

So now my doc is going to be even more stumped..... LOL I just know it's going to turn out something completely oddball.
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Old 01-06.-2008, 06:04 AM   #60
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Odd.

I first noticed a higher resting heart rate, but attributed that to some medication I am on. Never saw any change in exercise heart rate response except for watts/beat - that dropped 20%. In fact, without the power meter data, I probably would not have gone to the doctor...
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